Jordan Faust

Jordan Faust

July 21, 2016 - April 06, 2022

Obituary

EDGERTON - It is with unimaginable hurt, we announce the passing of our beautiful baby boy, Jordan Richard Faust, at the age of 5 years old. Jordan transitioned from his physical body on Wednesday, April 6, 2022, at the University of Wisconsin Children’s Hospital, after complications from cancer.


Lovingly known as “Bubba,” “Love Bug” or “Schmordy,” Jordan was born July 21, 2016, in Madison, Wis., but lived his home life in Edgerton, Wis. In late June of 2019, weeks before his 3rd birthday, Jordan was diagnosed with Neuroblastoma. Neuroblastoma is a rare childhood cancer of the “sympathetic nervous system” -- the network of nerves that carries messages from the brain to the rest of the body.


Jordan loved superheroes. Among his favorites were Iron Man, Captain America, The Flash, Batman, Deadpool, Black Panther, Spider-Man, but none more than The Hulk. Jordan loved to wear his Hulk hands, where he would “Hulk Smash” causing the earth around us to shake. He was the proud owner of almost every superhero action figure ever created, more impressively playing with them all. When he wasn’t playing with superheroes, he was watching superhero movies, including watching and loving Deadpool and Deadpool 2, thanks dad.


Another place of happiness was with his brothers. Whether it was playing nerf blasters with his brother, Malik, or watching his oldest brother, Skyler, play football and baseball, or simply sitting with both of them watching the iPad, this brought Jordan so much joy. When winding down for the night, nothing brought more comfort to Jordan than lying next to his mom, and as Jordan put it, “playing with mommy’s beautiful beautiful hair.”


Though his life wasn’t as long as he deserved, Jordan was able to bring light to the darkest corners of a battle with cancer. Simply put, childhood cancer is hell. During the first year after being diagnosed, he spent 320 days in the hospital, one stay which included a 19-hour surgery to remove a softball sized tumor. As awful as that is, it never broke his spirit. He would smile, laugh, inspire others, and surpass every hurdle placed in front of him.


In order to receive the chemotherapy, a “Hickman” line was placed. This is a soft, small, long, hollow tube that is placed into a vein in the chest and ends in a larger vein just above your heart. As time progressed, Jordan would lose the function of his kidneys which meant more surgery. A catheter was placed in his stomach, and he would require 10-hour nightly dialysis. As if this wasn’t enough, Jordan required what’s known as a “G/J tube,” which was placed into his stomach and small intestine, one for meds, one for nutrition. For 99.9% of the world, enduring any ONE of these would be enough to break you mentally, physically, emotionally and spiritually. Similar to The Flash being struck by lightning, Spider-Man being bitten by a radioactive spider or Captain America receiving the super serum, it never inhibited him, it only amplified what Jordan truly was: a hero. While inspired by the heroes he saw on TV, Jordan’s heroics blazed its own trail.  A trail which others can now follow, a trail which will forever grow.


Jordan will be incredibly missed by his parents, Justin Faust and Ashley Gullickson; two brothers, Skyler Gullickson-Niesen and Malik Allen; maternal grandma, Marcia Gullickson-Ellestad; maternal grandpa, Michael "Pappie" Ellestad; paternal grandma, Sherry Wunderlin; paternal great-grandpa, Gerald Sheskey; maternal great-grandparents, Kathy and Jim Burge and Darlene and David Kruckenberg; three aunts, Amber (Bob) Barnes, Rhea (Morgan) Vacha and Nikki (Steven) Loftin; great-uncle, Mark Sheskey; and many loving family and friends.


He was preceded in death by his uncle, Devin Gullickson; paternal grandpa, Bob Wunderlin; and maternal grandpa, Richard Gullickson.


A Celebration of Life will be held at GUNDERSON OREGON FUNERAL AND CREMATION CARE, 1150 Park St., Oregon, at 11 a.m. on Wednesday, April 13, 2022. Visitation will be held at the funeral home from 4 p.m. until 7 p.m. on Tuesday, April 12, 2022, and also at the funeral home from 10 a.m. until the time of the service on Wednesday.


We would like to give special recognition to the Oncology and PICU nursing staff at American Family Children’s Hospital. Warm, welcoming, understanding, intelligent and caring only scratch the surface of the ways to describe them. While it would be easy to continue listing their amazing qualities, nothing was more important than the impact they made on Jordan. When a 3-year-old is getting poked, cut, injected with poison for treatment or has different teams of people checking on him… to hear him feel safe in the nurses’ presence, where safe was in short supply, meant more to him, and more to our family than one could ever imagine. Simply put, they are irreplaceable, and we can never thank you enough.


In lieu of flowers, we ask that donations be made for the following needed items to the American Family Children’s Hospital in Jordan’s name: Legos, Play-doh, crayons, slime kits and action figures.


#Jordanstrong now, and forever. Online condolences may be made at www.gundersonfh.com.


Gunderson Oregon

Funeral & Cremation Care

1150 Park St.

(608) 835-3515


Events

12
Visitation
Tue Apr 12, 2022 @ 4:00 PM - 7:00 PM CDT
Gunderson Oregon Funeral & Cremation Care • 1150 Park St., Oregon, WI 53575
13
Visitation
Wed Apr 13, 2022 @ 10:00 AM - 11:00 AM CDT
Gunderson Oregon Funeral & Cremation Care • 1150 Park St., Oregon, WI 53575
13
Funeral Service
Wed Apr 13, 2022 @ 11:00 AM - 11:30 AM CDT
Gunderson Oregon Funeral & Cremation Care • 1150 Park St., Oregon, WI 53575
13
Graveside Service
Wed Apr 13, 2022 @ 12:00 PM - 12:30 PM CDT
Town of Dunn Burying Ground • -, Oregon, WI 53575
RV
Rhea Vacha
Other •
Your strength and resilience was and will always be admirable and never forgotten. Aunty loves you so much and will forever have a large chunk of my heart full of you! I love you more than ever!
RG
Robin R Gorman
Other •
This little Guy was a True Superhero! I have 5 Grandchildren & can't even imagine going through what you have. He was Blessed to have a Loving & Caring Family. I don't know you but saw this on FB that a friend Posted & have been Praying along w/so Many. I pray for Comfort to all of you to get through this. I'm So Sorry.
RW
Rosella Wileman
Other •
I remember the first time I saw Jordan was at Skylar's baseball game at the Elementary school. He was running down the playground hill, going as fast as he could and Mom (Ashley) was right behind him trying to catch up. You had every parent laughing their head off at you trying to corral him. Oh how I wish those time could be relived. He was such a darling child, all bundled up watching Skylar's football games and attending his basketball games. I will cherish those moments and never forget all the love he got from you and your family and all his brothers best friends. My deepest sympathy to your family.
KS
Karen Schlageter
Other •
I have had the pleasure of caring for Jordan for the past year. I have said this to many people including Ashley but Jordan was a true inspiration to me. He is a superhero among superheroes. He could be strong because Ashley was strong for him. Jordan was blessed to have a great family in his life. I don't know how you all did it but everything you did was with grace and dignity. The entire family is inspiring. I will never forget Jordan or his love for superheroes. He is now among the angels and superheroes in heaven. Bless you all and peace be with you. Karen Schlageter
JS
Julie Strang
Other •
I was so lucky to have know Jordan and his mom Ashley through the AFCH dialysis clinic. Jordan was so personable, courageous, smart , funny - one of the COOLEST kids I have ever had the honor to work with. Ashley is also the BEST mom, in the way she loved this child, through thick and thin, never ending treatments and hospitalizations. You two were such a team and the way you were able to support him through the difficult, painful days is the stuff of a true super hero. It is unbearable to see your child suffer and your strength make it all bearable for him. I know he helped you get through it as well. Your love and unwavering support truly helped him live the best life. It always breaks my heart when the most amazing families have to bear the most tragic loss like this. But I believe Jordan will live on in everyone he touched, and his example will continue to inspire many. Thank you all for letting us into your lives. I will forever see his face and hear his laugh with anything marvel related. :) My thoughts are with you, and I am sending much love to your whole family. Julie Strang MSW
D
Dave
Other •
My deepest sympathies :(

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